Breaking The SSickle Cell Cycle Foundation, Inc.
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615-669-5894
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P.O. Box 218554
Nashville, TN 37221
Organization Details

Executive Director


Executive Director Dr. Lametra Scott
E-mail btsscycle@gmail.com
Term Start August 2015
Lametra 's Experience: Dr. Scott is the Founder/CEO of the non-profit organization Breaking The SSickle Cell Cycle Foundation, Inc., a pharmacy consultant, and mother of a child with sickle cell disease. Dr. Scott has worked in pharmacy for 20 years. Over the last 10 years, she has worked in managed care pharmacy assisting organizations with developing strategies to provide cost-effective pharmaceutical care and improving patient outcomes. As a caregiver and healthcare professional, Dr. Scott understands the challenges associated with treating complex conditions like sickle cell disease. In 2015, Dr. Scott decided to leverage her experiences in managed care and community pharmacy and founded a non-profit for sickle cell disease which focuses on promoting community awareness, education, and prevention of sickle cell disease. Dr. Scott has led numerous outreach efforts to educate the community and other healthcare professionals about sickle cell disease.

Dr. Scott has been recognized for her involvement in sickle cell advocacy. She was featured in the inaugural edition of PharmaSis Magazine- a magazine that celebrates women in pharmacy, featured on the CDC's website " Real Stories from People Living with Sickle Cell Disease" and she is also a Power Moves Award recipient, an honor that is awarded to "Ordinary people doing EXTRAordinary things" in the community. Dr. Scott contributes to student pharmacist academic development and conducts didactic presentations on sickle cell disease at both the University of TN and Lipscomb College of Pharmacy.

Dr. Scott obtained her Doctorate of Pharmacy degree (PharmD) from the University of Tennessee College of Pharmacy and she also holds a Bachelor of Science degree in Biology from the University of Memphis. She believes patient engagement and inclusion is key to developing best practices for providing care to sickle cell patients. Her contributions have been published in the Journal of Health Care for the Poor and Underserved.

Staff

Full Time Staff 0
Part Time Staff 0
Volunteers 7
Contractors 0
Retention Rate 100%

Plans & Policies

Does your organization have a Fundraising Plan? Under Development
Does your organization have a Strategic Plan? Under Development
Years Strategic Plan Considers
When was the Strategic Plan adopted?
Does your organization have a Management Succession Plan? Under Development
Does your organization have a Policy and Procedure Plan? Under Development
Does the organization have a Nondiscrimination Policy? Yes
Does the organization have a Whistle Blower Policy? No
Does the organization have a Document Destruction Policy? No

Evaluation

Is there a formal evaluation for... Frequency (if applicable)
CEO/Executive Director
Senior Management
Non-Management

Affiliations

Affiliation Year
Dr. Lametra Scott 2016

Awards


Award / Recognition Organization Year
Dr. Lametra Scott NAACP-Presidential Certificate of Appreciation 2021
Dr. Lametra Scott PK Williams Enterprises-Community Advocacy Award 2017

CEO/Executive Director/Board Comments


Breaking the SSickle Cell Cycle Foundation is monumental in creating a first of its kind tailored service to meet the requests of the sickle cell community in the Middle TN region. In the past 6 years, as the board vice president, the board has conducted extensive research to understand what matters most to a community that has experienced significant lack in available community support services for decades. The challenge the foundation faces, of having insufficient capital to meet the needs of the SCD population, is not only that of the organization. Lack of funding for sickle cell disease advocacy is a global public health issue that has traditionally been underfunded and under researched. The lack of funding in this area is believed to be associated with the fact that SCD only affects minority populations, but SCD is now known to not have ethnic boundaries. SCD can affect anyone. Our Executive Director, Dr. Lametra Scott , and our organization has done a phenomenal job in building relationships with community partners such as:
Meharry Sickle Cell Center who we partner with to conduct SCD trait testing,
Vanderbilt which helps us in advocating awareness initiatives
American Red Cross and Blood Assurance who we collaborate with to create projects aimed at increasing blood donations for use in the SCD population.
As the vice-president, it is my privilege to share the core of our organization is structured on 2 important key components.
- Offering Patient Centered Services
A tailored and personalized array of services based on our Executive Director and Founder's personal experience of how sickle cell and it's variances can affect a family first hand (not all sickle cell is or can be treated the same).

-Raising SCD Education and Awareness
Conducting community outreach where there is a shortage of awareness and appealing to community members that are not directly impacted by SCD but are passionate and driven to finding solutions and resources to improve an underserved health disparity.

Our Goal Is to expand and deepen the roots in each of these areas. To provide not only a service but an emotional experience that will leave all those who get to know Breaking the sickle cell Foundation as a place of inclusiveness, and personalized care.