Bright Heart Foundation
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615-873-0152
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P.O. Box 3463
Brentwood, TN 37024
Organization Details

Statements

Mission

Grounded in love, with a primary mission of hope, Bright Heart Foundation advocates for and supports children and their families living with the challenges of Congenital Heart Defects (CHD), while also providing support for the physicians who treat them.

CHD currently affects about 40,000 newborns in the United States each year. Of those births, 25% have a critical CHD, which generally requires surgery or other procedures in their first year of life. CHD is a lifelong battle for many children as there currently is no cure.

Through HOPE we help heal hearts!

Bright Heart Foundation Raises Money For CHD Research
+ Our Three Programs:

SURVIVE Program
Provide support tools to doctors and nurses to use for their inpatient babies and children crucial to keeping their spirits elevated during their months/years of hospital stays as they fight to survive CHD. (i.e. toys, blankets, stuffed animals, pacifiers, etc.)

THRIVE Program
Provide developmental support equipment to the inpatient and outpatient healthcare team in OT, PT, and Speech Therapy to use for patients as they work to reach their full ability potential and thrive. (i.e. special therapy chairs, motivational toys, special bottles, etc.)

ALIVE Program
Provide FREE mental health care to those living with CHD, family members

Background

Grounded in love, with a primary mission of hope, the Bright Heart Foundation advocates for and supports children and their families living with the challenges of Congenital Heart Defects (CHD), while also providing support for the physicians who treat them.

CHD currently affects about 40,000 newborns in the United States each year. Of those births, 25% have a critical CHD, which generally requires surgery or other procedures in their first year of life. CHD is a lifelong battle for many children as there currently is no cure.

Through hope we heal hearts.

Luke's Story

Back in 2017, sixteen weeks into their pregnancy, Linda and Clint Pilkinton heard the news; their baby would be born with Hypoplastic Left Heart Syndrome, a rare congenital defect in which a part of the infant's heart is underdeveloped or not there at all. The disease currently affects about 960 babies each year in the United States.

The news that their baby would be born with "half a heart" was devastating, leaving the couple feeling "helpless and hopeless," and resulting in a very stressful pregnancy.

Born on December 21, 2017, Luke Pilkinton has already endured two open-heart surgeries and will require further surgery when he reaches three years of age.

Clint and Linda Pilkinton established the Bright Heart Foundation not only to anchor all-important research efforts, but, by sharing their own story, to raise awareness and offer hope and support to those families dealing with the everyday challenges of CHD.

"Our first-hand experience has taught us that one of the most important tools for healing the sick, and to support their families and physicians, is to keep their hope alive," Linda says. "Without genuine support and love from those around them, healing can be less successful for those precious infants who are struggling to survive."

Impact

Bright Heart Foundation Raises Money For CHD Research
+ Our Three Programs

SURVIVE Program
Provide support tools to doctors and nurses to use for their inpatient babies and children crucial to keeping their spirits elevated during their months/years of hospital stays as they fight to survive CHD.

THRIVE Program
Provide developmental support equipment to the inpatient and outpatient healthcare team in OT, PT, and Speech Therapy to use for patients as they work to reach their full ability potential and thrive.

ALIVE Program
Provide mental health care to those living with CHD, family members

2018 - $10,00 back to Pediatric Cardiac Surgery Endowment Fund at Vanderbilt
2018 - $2000 ($50 to each of the 40 families that would be spending Christmas inpatient)
2019 SURVIVE - $2400 in-kind donation to staff treating inpatient children
2019 THRIVE - $2600 in-kind donation to outpatient therapists treating children
2020 - "Hockey Has Heart" event for CHD awareness
2020 - The Preds CHD Wubbanub Bear in partnership with the Predators Foundation and Wubbanub/ Trebco
2020 SURVIVE - $2600 in -kind donation to staff treating inpatient children
2020 THRIVE - $2400 in-kind donation to inpatient therapists treating children
2021 - $2500 for ALIVE Program to continuing funding FREE mental health therapy for those with CHD, their families, and their care team members.
2021 ALIVE - seeking $20,000 to our mental health program treating children, families, and care them that are affected by the journey of CHD.
2021 - "Hockey Has Heart" event for CHD awareness
2021 - The Preds CHD Wubbanub in partnership with the Predators Foundation and Wubbanub
2021 - Bright Heart Month (February) - multiple initiatives including: gifting event to CHD Health Heroes + Preds CHD Bear Wub + "Hockey Has Heart" + Petition to the American Heart Association + CHD awareness product launch + fundraising campaign + Virtual Session with Moms on Call + Virtual Family Fun Event

Needs

$20,000 grant to our "ALIVE" Program
- to support a therapist providing in-person and tele-therapy appointments one day a week for 50 weeks through AGAPE Nashville to our TN CHD community
1) CHD children 2) their families 3) doctors, nurses and therapists that treat them

We are also seeking sponsorships for 2022 Bright Heart Month:
1) CHD mural
2) Gifting Event For CHD Health Heroes (Doctors, Nurses, Therapists)
3) "Hockey Has Heart" night with the Nashville Predators
4) Awareness Product Line
5) Legistlative
6) Virtual Sessions
7) Awareness Campaigns
5) Legislative movement for CHD
6) Fundraising campaign

CEO Statement

Thank you for your support of Bright Heart Foundation.

Through our initiatives we can help treat those affected by CHD and mobilize a larger army to join our advocacy for these children. In turn, this will create a louder message and help us raise more funding for research as well.

Through SURVIVE, THRIVE, and ALIVE we can give hope to help heal hearts.

Board Chair Statement

Clint and I are the parents of a child with CHD. Luke has Hypoplastic Left Heart Syndrome - he was born with 1/2 heart. His disease is only one in the over 40 kinds of CHD. We are coming from a place of first-hand experience about this world. We see the children dying and the families struggling and have the personal perspective as well as the marketing and sales background to promote this cause further. We realize that people have not heard about this disease because babies do not know to advocate for themselves. We also realize that the adults that are raising these special children are also traumatized and may not have the capacity to advocate for this cause. We fight on their behalf. We fight on Luke's behalf.

Through hope we heal hearts.

Luke's Story

Back in 2017, sixteen weeks into their pregnancy, Linda and Clint Pilkinton heard the news; their baby would be born with Hypoplastic Left Heart Syndrome, a rare congenital defect in which a part of the infant's heart is underdeveloped or not there at all. The disease currently affects about 960 babies each year in the United States.

The news that their baby would be born with "half a heart" was devastating, leaving the couple feeling "helpless and hopeless," and resulting in a very stressful pregnancy.

Born on December 21, 2017, Luke Pilkinton has already endured two open-heart surgeries and will require further surgery when he reaches three years of age.

Clint and Linda Pilkinton established the Bright Heart Foundation not only to anchor all-important research efforts, but, by sharing their own story, to raise awareness and offer hope and support to those families dealing with the everyday challenges of CHD.

"Our first-hand experience has taught us that one of the most important tools for healing the sick, and to support their families and physicians, is to keep their hope alive," Linda says. "Without genuine support and love from those around them, healing can be less successful for those precious infants who are struggling to survive."


Service Categories

Primary Category: Health Care  - Patient & Family Support 
Secondary Category: Health Care  - Alliances & Advocacy 
Tertiary Category: Health Care  - Fund Raising & Fund Distribution 

Areas Served

Our focus is serving Tennesseans with a focus on Middle TN.

TN - Williamson
TN - Davidson
TN