Cystic Fibrosis Foundation
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615-255-1167
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3401 Mallory Lane, Suite 100
Franklin, TN 37067
Organization Details

Fiscal Year

Fiscal Year Start

01/01/2023

Fiscal Year End

12/31/2023

Projected Revenue

$1,396,595.00

Projected Expenses

$758,424.00

Organizational Budgets and Other Documents

2023 Chapter Budget for FY23 2023
2020 Chapter Budget 2020
2018 Chapter Budget 2018
2017 Chapter Budget 2017
2016 Budget 2016
2014 Budget 2014
Budget 2013
cystic fibrosis foundation 2012 budget 2012
cystic fibrosis foundation 2011 budget 2011
cystic fibrosis foundation 2010 budget 2010
cystic fibrosis foundation 2008 budget 2007
cystic fibrosis foundation 2006 budget 2006
cystic fibrosis foundation 2005 budget 2005

IRS Letter of Exemption

Tax exempt 2022

Detailed Financials

Revenue and Expenses
Fiscal Year202220212020
Total Revenue $248,630,352.00$417,237,551.00$800,629,953.00
Total Expenses $396,664,114.00$375,611,186.00$381,380,991.00
Revenue Less Expenses ($148,033,762.00)$41,626,365.00$419,248,962.00

Revenue Sources
Fiscal Year202220212020
Foundation and Corporation Contributions $0.00$0.00$0.00
Government - Federal $0.00$0.00$0.00
Government - State $0.00$0.00$0.00
Government - Local $0.00$0.00$0.00
Government - Unspecified $0.00$0.00$0.00
Contributions, Gifts, and Grants $31,600,653.00$36,012,981.00$25,095,186.00
Indirect Public Support $303,736.00$362,626.00$427,067.00
Earned Revenue $2,594,761.00$1,273,633.00$573,216,735.00
Investment Income, Net of Losses $128,066,687.00$306,161,908.00$109,737,455.00
Membership Dues $0.00$0.00$0.00
Special Events $56,151,039.00$45,841,986.00$44,222,819.00
Revenue In-Kind $9,893,530.00$4,318,566.00$3,454,283.00
Other $20,019,946.00$23,265,851.00$44,476,408.00

Expense Allocation
Fiscal Year202220212020
Program Expense $323,348,816.00$319,494,536.00$327,578,271.00
Administration Expense $42,879,557.00$35,269,739.00$32,223,198.00
Fundraising Expense $30,435,741.00$20,846,911.00$21,579,522.00
Total Revenue/Total Expenses 63%111%210%
Program Expense/Total Expenses 82%85%86%
Fundraising Expense/Contributed Revenue 8%6%6%

Top Funding Sources
Fiscal Year202220212020
Top Funding Source & Dollar Amount Investment Income
$128,066,687.00
Investment Income
$306,161,908.00
Program Revenue
$573,216,735.00
Second Highest Funding Source & Dollar Amount Fundraising Events
$56,151,039.00
Fundraising Events
$45,841,986.00
Investment Income
$109,737,455.00
Third Highest Funding Source & Dollar Amount Contributions, Gifts, and Grants
$31,600,653.00
Contributions, Gifts, and Grants
$36,012,981.00
Other Revenue
$44,476,408.00

Assets and Liabilities
Fiscal Year202220212020
Total Assets $4,735,058,992.00$5,691,109,976.00$5,369,999,661.00
Current Assets $135,042,769.00$110,479,487.00$119,172,124.00
Long-Term Liabilities $0.00$0.00$0.00
Current Liabilities $291,339,976.00$274,479,667.00$271,006,647.00
Total Net Assets $4,443,719,016.00$5,416,630,309.00$5,098,993,014.00

Endowment Info

Do you have an endowment?

Yes

What is the value of the endowment?

$4,000,000,000.00

What is the spending policy for your endowment?

N/A

Capital Campaign Info

Are you currently in a Capital Campaign?

Yes

Do you anticipate a campaign in the next 5 years?

No

What is the campaign goal?

$125,000,000.00

What is the purpose of the capital campaign?

We are driven by a dream that every person with cystic fibrosis should have the chance to live a long, healthy life. To achieve this vision, we are embarking on the Milestones III: Driven by a Dream campaign. Genetic therapies - our best hope for curing cystic fibrosis - are more complex than anything we have ever done and will require a substantial investment.

With your support, we can invest our resources in research today, while raising funds for tomorrow in order to reach the finish line. We will not leave anyone behind.

Campaign Start

January 2020

Campaign End

December 2024

Campaign Raised to Date Month

January

Campaign Raised to Date Year

2024

Campaign Raised to Date Amount

$75,000,000.00

Solicitation Permit Info

State Charitable Solicitations Permit

Yes

Permit Expiration Month

June

Permit Expiration Year

2024

Form 990s

CFF National 990 2022
CFF National 990 2021 2021
CFF National 990 2020 2020
CFF National 990 2019 2019
CFF National 990 2017 2017
CFF National 990 2016
CFF National 990 2015
2014 990 2014
2013 990 Form TN CHAPTER ONLY 2013
2012 990 Form 2012
cystic fibrosis foundation 2012 990 2012
cystic fibrosis foundation 2011 990 2011
cystic fibrosis foundation 2010 990 2010
cystic fibrosis foundation 2009 990 2009
cystic fibrosis foundation 2008 990 2008
cystic fibrosis foundation 2007 990 2007
cystic fibrosis foundation 2006 990 2006
cystic fibrosis foundation 2005 990 2005
cystic fibrosis foundation 2004 990 2004

Audit Documents

CFF National - 2022 Financial Statements - Independent Auditors' Report 2022
CFF National - 2021 Financial Statement - Independent Auditors' Report 2021
CFF National - 2020 Financial Statement - Independent Auditors' Report 2020
2019 Financial Statement 2019
CFF National 2017 financials 2017
CFF National 2016 financials 2016
CFF National 2015 financials 2015
audit 2014
cystic fibrosis foundation 2012 & 2013 audit NATIONAL 2013
cystic fibrosis foundation 2011 & 2012 audit 2012
cystic fibrosis foundation 2009 & 2010 audit 2010
cystic fibrosis foundation 2008 audit 2008
cystic fibrosis foundation 2007 audit 2007
cystic fibrosis foundation 2006 audit 2006
cystic fibrosis foundation 2005 audit 2005

Foundation Staff Comments


Financial figures taken from Form 990. Form 990 was completed by KPMG, LLP. Foundation contributions may be included in Individual contributions, as these are not broken down. Comment provided by Hayley Sulfridge 1/29/24.